International SCI Data Sets

INTERNATIONAL SPINAL CORD INJURY DATA SETS

International SCI Case Registration and ICECI Coding Software - Injury Prevention Module (Evaluation version)

Click on the links below and download zip files to the desktop. Unzip files using WinZip and read the ''Please read me first' file in the folders for instructions on starting the applications.

- ICECI training application
- ISCoS case registration and ICECI injury coding software (Update)
- ASCoN case registration and ICECI injury coding software (Update)
- Training Movies

The table below contains links for the approved and finalized International Spinal Cord Injury (SCI) Data Sets (Biering-Sørensen F, Charlifue S, DeVivo M, Noonan V, Post M, Stripling T, Wing P. International Spinal Cord Injury Data Sets. Spinal Cord. 2006 Sep;44(9):530-4.). All articles directly related to the International Spinal Cord Injury Data Sets may be downloaded for free.

Members of the Executive Committee of the International SCI Standards and Data Sets committees (ECSCI) has worked with the National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health (NIH), Common Data Element (CDE) Project to integrate the International SCI Data Sets with the other NINDS CDE resources. This effort has included the development of standard variable names for the data elements in the International SCI Data Sets and suggested database structures (i.e., relational data tables for the data sets). These recommended variable names and database structures are intended for free use by clinicians and researchers, so that they can more easily share and combine clinical/research data. These materials as well as similar data standards for other neurological disorders are also available through the NINDS CDE Project Web site at www.CommonDataElements.ninds.nih.gov. An article describing the collaborative work of the ECSCI and the NINDS CDE Team is available: Biering-Sørensen F, Charlifue S, Devivo MJ, Grinnon ST, Kleitman N, Lu Y,Odenkirchen J. Incorporation of the International Spinal Cord Injury Data Set elements into the National Institute of Neurological Disorders and Stroke Common Data Elements. Spinal Cord. 2011 Jan;49(1):60-4.

We welcome translations of the International SCI Data Sets but you need to follow the recommendations in this publication: Biering-Sørensen F, Alexander MS, Burns S, Charlifue S, Devivo M, Dietz V, Krassioukov A, Marino R, Noonan V, Post MW, Stripling T, Vogel L, Wing P. Recommendations for Translation and Reliability Testing of International Spinal Cord Injury Data Sets. Spinal Cord. 2011 Mar: 49(3):357-60.