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International Standards / Data Sets

INTERNATIONAL STANDARDS:

Autonomic Standards Assessment Form

International Standards for Neurological Classification of Spinal Cord Injury Dermatome chart:

http://www.asia-spinalinjury.org/publications/2006_Classif_worksheet.pdf

(See attached files):

Key Sensory Points

Motor Exam Guide

INTERNATIONAL DATA SETS:

International SCI Case Registration and ICECI Coding Software - Injury Prevention Module (Evaluation version)

Click on the links below and download zip files to the desktop. Unzip files using WinZip and read the 'readme' files in the folders for instructions on starting the applications.

- ICECI training application
- ISCoS Case registration and ICECI injury coding software
- ISCoS Case registration and ICECI injury coding software - training movies

Approved and Finalized International Spinal Cord Injury Data Sets

- International SCI Core Data Set (version 1.0), including training cases
- International SCI Lower Urinary Tract Function Basic Data Set (version 1.0), including training cases
- International SCI Urodynamic Basic Data Set (version 1.0), including training cases
- International SCI Urinary Tract Imaging Basic Data Set (version 1.0)
- International SCI Bowel Function Basic Data Set (version 1.1), including training cases
- International SCI Bowel Function Extended Data Set (version 1.0)
- International SCI Female Sexual and Reproductive Function Basic Data Set (version 1.0)
- International SCI Male Sexual Function Basic Data Set (version 1.0)
- International SCI Pain Basic Data Set (version 1.1), incl. Training Cases
- International SCI Cardiovascular Function Basic Data Set (version 1.0)
- International SCI Quality of Life Basic Data Set (version 1.0)

INFORMATION ABOUT THE COMMON DATA ELEMENTS PROJECT:

The Executive Committee of the International SCI Standards and Data Sets Committees (ECSCI) has worked with the National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health (NIH), Common Data Element (CDE) Project to integrate the International SCI Data Sets with the other NINDS CDE resources.  This effort has included the development of standard variable names for the data elements in the International SCI Data Sets and suggested database structures (i.e. relational data tables for the data sets).   These recommended variable names and database structures are intended for free use by clinicians and researchers, so that they can more easily share and combine clinical/research data. 

These materials as well as similar data standards for other neurological disorders are also available through the NINDS CDE Project Web site at www.CommonDataElements.ninds.nih.gov.  A manuscript describing the collaborative work of the ECSCI and the NINDS CDE Team is currently in press and will be referenced on this site upon publication.