Welcome to the series of webinars brought to you by the International Spinal Cord Society (ISCoS) in partnership with Wellspect®.

Our webinar series will build upon our existing podcast series.  With the SCI Care: What Really Matters series of webinars and podcasts, we engage with experts from around the world to discuss various topics relating to SCI: including treatment and rehabilitation, awareness and prevention, research and innovation, training and development. We aim to provide valuable insights and the most up to date information for those providing care to people with SCI around the world.

24th May 2022  Title: Surviving to Thriving: The Importance of Lived Experience in Bladder Management

Welcome to the fourth collaborative episode of our webinar series, SCI Care: What really matters between the International Spinal Cord Society (ISCoS) and Wellspect®, ‘Surviving to Thriving: The Importance of Lived Experience in Bladder Management.’ In this webinar, Dr Kim Anderson chairs the panel as they share their lived experience, expertise, geographical differences and thoughts for the future.  Dr Kim Anderson shares her experiences and what it has been like in the U.S.A. Shivjeet Raghav shares what it has been like living with e SCI for over 40 years and his knowledge from an Indian perceptive. Ari Seirlis gives his account of how change was achieved in South Africa and Raffaella Tarascio shares the peer to peer support available in Italy. In this wonderful webinar as we meet each panellist where they are today? Each panellist reflects on where are we? How far have we come? A sharing of their lived experience and what is thriving in their country? What is the gold standard and how are they getting there? 

 Many factors impact a person’s choice and level of quality of life. It is finding the right solution for the individual to live their life as they wish to avoid complications and infections as much as possible. Through information, education and peer support – freedom, independence, and a higher quality of life can be realised.  All panellists agree that the level of information and support from professionals and peers is vitally important to a patient’s journey and can be the difference between surviving and thriving.




20th Jan 2022  Title: Importance of patient-centred care in neurogenic bladder and bowel management

The Vison of ISCoS is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally". Partnership and collaboration is key in helping us to realise this vision. We are delighted that we have been able to partner with Wellspect to deliver a number of webinars and podcasts, including our very first webinar that will focus on the Importance of patient-centred care in neurogenic bladder and bowel management.'

Mr Grant Friedrich, Clinical Relations Manager for Wellspect Healthcare, is joined by Dr Gianna Rodriguez, Clinical Associate Professor, University of Michigan Dept of Phys Med and Rehab and Dr Ram Hariharan a Consultant at the Princess Royal Spinal Cord Injuries Centre, Sheffield, the UK as they discuss the Importance of patient-centred care in neurogenic bladder and bowel management specifically focusing on the diverse challenges patients experience which makes evaluation with standardised outcome measures difficult.


Where to find us

National Spinal Injuries Centre,
Stoke Mandeville Hospital,
Aylesbury, Buckinghamshire,
HP21 8AL, United Kingdom

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Tel: +44 1296 315 866

Email: admin@iscos.org.uk

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